Did I Mention That I Lived?

by

New to This Mommy’s Heart? Check out my story from the beginning here – My PPCM Story

**Warning – Post Contains Graphic Images**

but just barely

The second time coming off of ECMO was just about as fun as the first time, but at least this time it was post-transplant and I had a real heart. I remember soon after they told us there was a heart available for me, one of my doctors came into the room. She told me not to worry, but that after I wake up from surgery I would feel like I had been hit by a bus. I can confirm that this is a fair analogy.

What Is Happening?

The first day after they woke me up, I wasn’t up for much. I had spent most of the night coughing and was breathing very quickly. A normal respiratory rate is 12-20 breaths per minute but my rate was around 40-50. Still pretty hazy at this point, but I remember a doctor asking me why I was breathing so fast. I remember thinking he seemed rude but, honestly, coming off sedation I tended to dislike a lot of people.

At this point, however, I was really freaked out. All of the sedation medication really messes with your head. While I was on ECMO the second time, I kept having this nightmare that was constantly restarting over and over again. In the nightmare, they hadn’t been able to give me the heart transplant. Since I was still dealing with the grogginess of sedation, during this respiratory rate conversation I was still under the impression that I hadn’t gotten the heart transplant. People had told me that I had the surgery, but at that time my memory was very fleeting.

My husband kept telling me that they were going to think I was in pain because of how fast I was breathing. I, for some reason, interpreted this as I was supposed to be in pain. I decided to ask for painkillers so they would let me get the heart transplant. Although I wasn’t really experiencing much pain, I asked them to increase the painkillers I was getting. This still did not help with my respiratory rate.

They tried a CPAP (continuous positive airway pressure) and then a BiPAP (bilevel positive airway pressure) to help. These are both non-invasive ventilation therapies. My oxygen saturation was fine with 40% oxygen but I was still breathing really fast. Since the pain killers weren’t doing anything, they eventually gave me some antipsychotic mediation. Good call.

It’s All In Your Head

That night, the medication was still playing tricks with my head. My poor nurses – I was so out of it. I kept calling them into the room for random different things. Five times were literally because I thought I had soiled myself (I hadn’t), several times I just wanted to get up because my circadian rhythm (day/night cycle) was off and once because of those pesky nightmares (that I am pretty sure I was awake for).

The nightmare this time was a fun one. I was convinced there were two other people in bed with me. All of us were very ill and if I moved my body at all, one of the other people would die. So I called my nurse in and I asked, “are there other people in bed with me?”

I’m sure it would be a HIPPA violation but I would love to read a book written by nurses about all the weird stuff patients say while coming off of sedation.

Keep Moving

They gave me a day to rest but bright and early the second day after I was extubated they had me working with physical and occupational therapy. For about 15 minutes, I worked on leg dangles and arm/leg exercises. Later that same day, I progressed to standing, standing exercises and moved from my bed to the chair.

Did I Mention I Lived - This Mommy's Heart - First Time Up Post Transplant
If this was a video, you would see me slowly begin to fall to the side when she lets go of my shoulders. I was so weak
Did I Mention I Lived - This Mommy's Heart - Leg Dangles
Did I Mention I Lived - This Mommy's Heart - Working With OT
I was relying on my husband to put Blistex on my lips because they were dry. I had no idea he was coating me in it. I think the wonky braid brings the whole look together.

Speech therapy also came around that day and upgraded me to sips and chips (sips of water and ice chips). Who knew water and ice could be such a wonderful treat. After not consuming anything for over a week, that is definitely the most accurate description.

My day was fairly uneventful besides that. I did have some issues with high blood pressure and a fast heart rate but this is common following a heart transplant. It is actually a sign that the heart is working really well.

**Graphic Image Warning**

Did I Mention I Lived - This Mommy's Heart - Chest Tubes 1
Chest Tubes
Did I Mention I Lived - This Mommy's Heart - Chest Tubes 2

The next day my chest tubes were pulled first thing in the morning. Definitely one of my least favorite things. I don’t enjoy being an active participant but with chest tubes, they ask you to breathe in and then bear down. At that point, they yank the tubes out of your body. It is squirty, there are weird noises and I am just not a fan. However, chest tubes are crazy uncomfortable so afterward, I did feel way better.

The rest of the day consisted of more work with occupational and physical therapy. I did my first walk, sit/stands and a bunch of leg exercises with physical therapy. When occupational therapy came I did a 100–foot walk. Watch out world, here I come!

On my first walk I made it to the door
100 foot walk

Discussions started about discharge and the possibility of me entering an in-patient rehab program for a few weeks to get additional help from OT and PT. I was moved out of the ICU and back to the main floor. All signs were pointing to an easy road home with my new heart!

Down The Rabbit Hole

Before bed, they upped my tacrolimus and restarted me on AGT (a.k.a Rabbit) again. My husband stayed with me that night and I fell asleep to him reading Harry Potter.

That night I was once again racked with nightmares. These are a little less clear to me, but I do remember at least one of the dreams dealing with a gravely ill young child I was trying to help. Nonetheless, it was a night filled with anxiety and restless sleep.

By that morning my heart rate had shot up to the 140s and my temperature was over 102 degrees. After the AGT infusion had stopped, however, my vitals went back to their normal levels. They ran several tests to rule out other causes but they determined that the fluctuation with my heart rate and temperature were side effects from the infusion.

The biggest news of the day, however, was that I got to have my first shower in almost two months. Sure, I had to sit in a chair, couldn’t wash my own hair because of sternal precautions and was basically bathed by OT but, who cares, it was a shower!

Take Another Little Piece Of My Heart

That day was also the first of thirteen right heart catheterizations and biopsies that I would receive during my first year post-transplant. All of my pressures came back looking good. We would get the results from the biopsy the next day. The day wrapped up with a sonographer coming to my room and doing an echocardiogram to check how well my heart was working.

Did I Mention I Lived - This Mommy's Heart - Pieces of My Heart
Pieces of my heart after the biopsy

The next day, we received fantastic news. The echocardiogram came back showing that my ejection fraction was 68%. An ejection fraction of 55% or higher is considered normal so my heart was working really well. I also got the results back from my first biopsy and I had no rejection! To top it all off, speech upgraded me to a general diet. Yay for food!

Back in my own clothes

There was only one thing left that would make this the best day ever – finally getting to see the little humans I created after being away from them for a week and a half.

The first and last time they wrestled a mask on my toddler.

My sweet, sweet babies a.k.a the germ factories.

296 thoughts on “Did I Mention That I Lived?”

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    레버리지 방식의 스탁은 높은 이익을 제공하지만, 그만큼 상당한 위험성 동반합니다. 주식 거래의 변화는 추정이 어렵기 때문에, 레버리지를 이용할 때는 언제나 장터 동향을 면밀히 주시하고, 피해를 최소화할 수 있는 방법을 세워야 합니다.

    맺음말: 세심한 선택이 필요
    로드스탁을 통해 제공하는 레버리지 스탁은 강력한 투자 도구이며, 적당히 사용하면 상당한 이익을 벌어들일 수 있습니다. 하지만 상당한 리스크도 신경 써야 하며, 투자 결정이 충분히 많은 사실과 신중한 고려 후에 실시되어야 합니다. 투자자 본인의 재정적 상태, 위험을 감수하는 능력, 그리고 시장의 상황을 생각한 조화로운 투자 계획이 중요하며.

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  296. 로드스탁과의 레버리지 스탁: 투자의 신규 분야

    로드스탁에서 제공하는 레버리지 방식의 스탁은 주식 투자의 한 방법으로, 상당한 수익률을 목적으로 하는 투자자들을 위해 매력적인 선택입니다. 레버리지 사용을 사용하는 이 전략은 투자자들이 자신의 투자금을 넘어서는 금액을 투자할 수 있도록 함으로써, 증권 시장에서 훨씬 큰 작용을 행사할 수 있는 기회를 제공합니다.

    레버리지 방식의 스탁의 기본 원칙
    레버리지 스탁은 일반적으로 자금을 차입하여 투자하는 방식입니다. 사례를 들어, 100만 원의 자본으로 1,000만 원 상당의 주식을 사들일 수 있는데, 이는 투자자들이 기본적인 투자 금액보다 훨씬 더욱 많은 증권을 취득하여, 증권 가격이 올라갈 경우 해당하는 더욱 큰 수익을 가져올 수 있게 합니다. 그러나, 주식 가격이 하락할 경우에는 그 손실 또한 커질 수 있으므로, 레버리지를 사용할 때는 신중해야 합니다.

    투자 계획과 레버리지 사용
    레버리지는 특히 성장 가능성이 상당한 사업체에 투자할 때 효과적입니다. 이러한 기업에 높은 비율로 투입하면, 성공할 경우 큰 이익을 가져올 수 있지만, 그 반대의 경우 상당한 리스크도 감수하게 됩니다. 그러므로, 투자하는 사람은 자신의 위험성 관리 능력을 가진 시장 분석을 통해, 일정한 사업체에 얼마만큼의 자금을 투자할지 선택해야 합니다.

    레버리지 사용의 장점과 위험 요소
    레버리지 스탁은 큰 수익을 제공하지만, 그만큼 높은 위험도 동반합니다. 주식 장의 변동성은 예측이 힘들기 때문에, 레버리지를 이용할 때는 언제나 상장 동향을 면밀히 주시하고, 손실을 최소화하기 위해 수 있는 방법을 구성해야 합니다.

    최종적으로: 조심스러운 선택이 필요
    로드스탁을 통해 제공하는 레버리지 스탁은 효과적인 투자 수단이며, 적당히 이용하면 많은 수입을 가져다줄 수 있습니다. 그렇지만 높은 리스크도 신경 써야 하며, 투자 선택은 필요한 정보와 세심한 고려 후에 진행되어야 합니다. 투자자 자신의 재정 상황, 리스크 감수 능력, 그리고 장터 상황을 생각한 균형 잡힌 투자 계획이 핵심입니다.

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