Heart Transplant Day

New to This Mommy’s Heart? Check out my story from the beginning here – My PPCM Story

After we found out about the donor heart on January 7th, things started moving quickly in preparation for the heart transplant. We had several medical staff members come and talk to us and go over risks/benefits. There were also tons of lab drawn. The CTICU came over and asked me what room I wanted for after transplant. Finally, my husband did a dressing change in preparation for the surgery on the 8th.

All the labs that were drawn before transplant

Dry Run

On the 8th, we were woken up by my parents and kids coming into the room. They had left extra early to ensure they wouldn’t miss me before I went back for the heart transplant.

Soaking in my baby before surgery
Soaking in my baby before surgery

Anesthesia came by to explain a few things and asked if we had questions. Next, I had a CT scan of my chest/abdomen. After we returned from the CT, my husband and a VAD coordinator switched me from the Freedom Driver back to the larger C2 machine.

While we were counting down the minutes to my surgery, my family kept busy by packing up my room and moving thing over to the CTICU room. Before the surgery, I was moved down to pre-op. This is where I said goodbye to my family. At 1:45pm, I was rolled back to the operating room to get my new heart.

Heading down to pre-op
Heading down to pre-op
In the elevator going to pre-op
Family picture in pre-op before surgery
Family picture in pre-op before surgery
Spending time with my kids before surgery
Nurses in the CTICU letting my son color on the door
Nurses in the CTICU letting my son color on the door

Or so we thought…

A few hours after I was taken to the operating room, they told my family that the heart transplant was a dry run and the surgery would be rescheduled for the next day. Due to inclement weather, all air traffic had been grounded in the location my heart was coming from so no organs could be procured. My donor was still stable, so they believed there wouldn’t be an issue with having the surgery the next day.

I was later told that the operating room staff fought over who would have to tell me it was a dry run. Ultimately, it was the VAD coordinator. I was still in the operating room when they woke me up. Still hazy from the sedation, I remember opening my eyes and seeing the VAD coordinator. She told me it had been a dry run and all I said was “Ok” and closed my eyes again. She later told me she had to laugh because as soon as I woke up in the OR, I had grabbed my drivelines. Every good TAH patient does…

I felt like crap when they rolled me back to my room. I still had a peripheral IV in my left arm and a brachial A line in my right arm. There was also a giant central line in the right side of my neck that gave me a ton of pain. I had PONV and vomited a few times (the first time during my hospitalization).

Everyone was pretty disappointed the surgery did not happen but tried to remain hopeful that everything would go as planned the next day.

Medical Terminology

  • Brachial A Line – line placed in the brachial artery that is used to measure blood pressure and is more accurate than taking the blood pressure non-invasively
  • Central line – line that goes into a large blood vessel and ends near the center of the body (i.e. the heart)
  • PONV – postoperative nausea and vomiting

When Your Heart Stops

I slept well throughout the night but the next morning things became a bit more eventful. While my nurse was helping me to the bathroom around 5 am, my machine was moved and an alarm started going off. Anytime the machine keeping you alive starts alarming, you get a little concerned. When they look at the machine and it says that the alarm is for a system malfunction, well, you get a little more than concerned.

Several people came to the room trying to figure out what the issue was. Eventually the VAD coordinator was called and she told us that I needed to switch machines. The back up machine was turned on and the the nurse went to switch the driveline connection. It went a little like this:

Nurse unplugs me from the old machine and goes to plug me into the new machine. Misses the connection.

Me in my head: Hmm well that’s ok. She’ll get it next time.

Nurse goes to connect me into the new machine again. Misses again.

Me in my head: Uh-oh

Black

So, have you ever wondered what it feels like when your heart stops? Let me personally tell you how it felt.

It was absolutely delightful.

It was black everywhere and I couldn’t see anything. I was laying/floating in this perfect temperature substance. Kind of like water but I wasn’t wet. There was a voice, just like my inner thinking voice, telling me how comfortable I was and encouraging me to go to sleep. And I was like, “yeah, that sounds like a great idea.” Before I fell asleep, however, my inner voice got really loud and was screaming at me, “WAKE UP! YOU ARE NOT SUPPOSED TO BE SLEEPING!”

I’m assuming this is right around the time they finally managed to plug me back in. I woke up and I felt fine but there was one strange thing I learned from this experience. This was not the first time I had felt this.

Let’s go back. Back before I had either of my children. Back even before I was married. Let go back to 2012/2013 when I was flying back and forth between Boston and Indiana to plan our wedding.

On one of those flights, on a near empty plane, I started to feel very sick. My stomach felt very off and, even though I avoid airplane bathrooms like the plague, I decided I didn’t have a choice. The back of the plane was completely empty except for the two flight attendants. As I came up to them, I asked if the bathroom was behind them and they confirmed it was. The next thing I remember…

Black

I remember describing this experience later on to people as “the best dream ever”. It was warm, comfortable and felt so good. I don’t remember if my inner voice invited me to go to sleep but I do distinctively remember it screaming, “YOU AREN’T SUPPOSED TO BE ASLEEP!” Then I woke up in the aisle of the plane. My stomach no longer hurt and I felt fine.

So, what does this mean? I don’t know and I doubt I ever will. This knowledge, however, makes me question a lot. It makes me wonder how long I had actually been sick and if this is just a PPCM story.

Heart Transplant Day

The time for the transplant kept bouncing around throughout the day. First, 6 am then 4 pm then 6 pm then 11 am. They finally rolled me back around 12:15 pm.

Going down to the OR on heart transplant day
Is it strange that I wasn’t scared going into this surgery? Despite the fact that they were about to crack my chest open, remove the machine that was keeping me alive and replace it with a new heart, I was never scared. I was just so ready.

The night before, my mom had sent a text out to my siblings asking if anyone was able to come out and help with the kids. My sister and sister-in-law ended up flying to Washington. This turned out to be a great decision on my mom’s part. They were extremely helpful with taking care of my kids so my parents could stay with me.

According to my husband, the heart was not removed until around 3-5pm and then it had to fly to Seattle. The heart arrived at UWMC around 6:30 pm.

Around 10 pm, the surgeon came up to give my family the good news. The heart transplant had gone really well and the only real problem was the size of the heart. It was a little big for me but it was a good heart that they didn’t want to pass up. Ultimately, they had been able to fit the heart inside of my chest.

Around 12:45 am, I still wasn’t in my room but my family wasn’t too worried because they had been told how well the surgery had gone. My husband then ran into one of my nurses who told him I would be coming back on ECMO life support.

Below are the text messages from my husband (no responses to the texts are included) that he sent out to family over the course of my surgery.

This is what we call emotional whiplash:

6:47pm:
Yeah just called the OR and nurse called me back. Said the heart is in the room and they are starting to sew it in…it’s a go. Hope everything goes as expected.

9:35pm:
Heart is in and she is off bypass. Everything is going pretty much as expected it sounds like. They are just trying to stop bleeding and she’s gotten lots of blood products. Estimating about 90 minutes remaining.

10:44pm:
Dr. Koomalsingh just talked to us. Very happy and said heart is functioning very well. Right side and everything is doing well so no lung problems. Lots of blood products (FFP, platelets) but only 2-3 units of blood. The biggest concern again was the size, it was borderline too big but it’s a good heart and they didn’t want to pass it up. They took some prophylactic measures to try and make sure there was enough space to accommodate it. Closing the chest now and think it’ll fit but possibility of leaving her chest open for a day or two if needed (for edema to go down). Chest will probably be closed in 30-60 minutes and she’ll be up here like midnight. If everything continues to look good they’ll try extubation tomorrow. We were told this is officially her second birthday…looks to be a success so hope the next days and weeks go smooth and she can be home in a couple weeks

1/10 at 1:01am:
Something went wrong…not sure of anything except they are centrally canulating ECMO. Not good…really unsure. Cardiac interventionalist is checking to see if coronary arteries are blocked in some way or maybe air got into them. Very unusual that heart functioned so well then stopped so praying it’s transient. They may not be able to get TAH back in and would have to have emergency listing. Don’t know more at this time

3:21am:
About 30 minutes they are coming up to update us and settle her in. Her chest is open with a wound vac. Heart still not functioning…ECMO working but necessary to keep her alive. Don’t think TAH is an option now…don’t know what they’ll say but it could be really bad. All efforts are going to go towards recovering this heart’s function if possible

4:22am:
So she was 100% fine and decompensated faster than the surgeons have ever seen. She was 5 minutes from coming up and if she was in the elevator when this happened she would have died. They started CPR immediately and emergently reopened her chest. This was only a few minutes when this happened and so far it looks like all her other organ systems are ok but still early. Her heart shortly recovered but then started to decompensate again so they put her on ECMO. Sometimes this happens when a pocket of air moves out of the muscle and goes into the coronary arteries. That usually happens when the patient is being moved and I guess no one was touching her, so unlikely and even less so when they reviewed her EKG tracings. They did a left heart cath to look for vasospasm and the surgeon thought it would be clamped down hard. It was spasming a bit but not like he would expect but they gave a vasodilator which corrected it. They have never seen this presentation before but he suspects primary graft dysfunction. That occurs in like 10-15% of transplants and in her case is most likely a combination of that vasospasm and acute rejection. There are some untested antibodies but she was a completely negative crossmatch on HLA so also weird it would reject so much acutely. They are giving her a cocktail of drugs and letting her new heart rest on ECMO. If primary graft dysfunction is the case the heart is usually stunned and recovers function on like day 3 and patient off ECMO day 5-ish. He’s optimistic because it’s still in normal sinus rhythm but it didn’t recover as he would expect after giving the vasodilator for the spasm. TAH is not an option. They will talk later this morning and reactive her on the transplant list possibly. He said they received multiple offers on her but were waiting on the right one. If they decide to relist her they will have to lower the bar and pray she gets an offer soon. They really don’t want to keep her on ECMO more than 5-7 days just like before. He seems fairly optimistic it will recover but this is unusual and I don’t know…a miracle needed at this point

1,639 thoughts on “Heart Transplant Day”

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    레버리지 사용은 특히 성장 가능성이 높은 사업체에 투자할 때 효과적입니다. 이러한 기업에 큰 비중으로 투자하면, 성공적일 경우 큰 수입을 가져올 수 있지만, 반대 경우의 경우 큰 위험도 감수해야. 그렇기 때문에, 투자자들은 자신의 위험 관리 능력을 가진 상장 분석을 통해, 어떤 기업에 얼마만큼의 자본을 적용할지 결정해야 합니다.

    레버리지의 이점과 위험성
    레버리지 스탁은 큰 이익을 약속하지만, 그만큼 높은 위험성 동반합니다. 주식 거래의 변화는 예상이 힘들기 때문에, 레버리지를 사용할 때는 항상 시장 동향을 정밀하게 주시하고, 피해를 최소화하기 위해 수 있는 계획을 구성해야 합니다.

    맺음말: 조심스러운 결정이 요구됩니다
    로드스탁을 통해 제공하는 레버리지 스탁은 막강한 투자 도구이며, 잘 이용하면 큰 수익을 제공할 수 있습니다. 하지만 높은 위험성도 생각해 봐야 하며, 투자 결정은 충분한 데이터와 세심한 고려 후에 진행되어야 합니다. 투자자 자신의 금융 상황, 리스크 감수 능력, 그리고 시장 상황을 생각한 조화로운 투자 계획이 중요하며.

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  10. 주식신용
    로드스탁과의 레버리지 방식의 스탁: 투자의 신규 영역

    로드스탁에서 제공하는 레버리지 스탁은 증권 투자법의 한 방법으로, 큰 수익률을 목표로 하는 투자자들에게 매력적인 옵션입니다. 레버리지를 사용하는 이 전략은 투자하는 사람들이 자신의 자본을 넘어서는 투자금을 투자할 수 있도록 함으로써, 증권 시장에서 훨씬 큰 영향력을 행사할 수 있는 방법을 제공합니다.

    레버리지 방식의 스탁의 기본 원칙
    레버리지 스탁은 원칙적으로 자본을 대여하여 운용하는 방법입니다. 예시를 들어, 100만 원의 자본으로 1,000만 원 상당의 주식을 구매할 수 있는데, 이는 투자하는 사람이 기본 투자 금액보다 훨씬 더욱 많은 증권을 취득하여, 증권 가격이 올라갈 경우 상응하는 훨씬 더 큰 이익을 획득할 수 있게 합니다. 그러나, 주식 값이 내려갈 경우에는 그 피해 또한 크게 될 수 있으므로, 레버리지 사용을 이용할 때는 조심해야 합니다.

    투자 계획과 레버리지 사용
    레버리지 사용은 특히 성장 가능성이 상당한 사업체에 투입할 때 효과적입니다. 이러한 사업체에 높은 비중으로 투입하면, 성공적일 경우 상당한 이익을 가져올 수 있지만, 반대 경우의 경우 상당한 위험도 감수해야. 따라서, 투자자들은 자신의 위험 관리 능력과 시장 분석을 통해 통해, 어떤 기업에 얼마만큼의 자금을 적용할지 선택해야 합니다.

    레버리지의 이점과 위험성
    레버리지 방식의 스탁은 큰 수익을 약속하지만, 그만큼 큰 위험도 동반합니다. 주식 장의 변동은 예측이 곤란하기 때문에, 레버리지를 이용할 때는 항상 시장 동향을 정밀하게 주시하고, 손실을 최소로 줄일 수 있는 계획을 구성해야 합니다.

    결론: 조심스러운 선택이 요구됩니다
    로드스탁에서 제공된 레버리지 스탁은 강력한 투자 수단이며, 적절히 사용하면 많은 이익을 제공할 수 있습니다. 그렇지만 큰 위험성도 신경 써야 하며, 투자 선택은 충분히 많은 사실과 조심스러운 고려 후에 이루어져야 합니다. 투자자 본인의 재정적 상태, 위험 수용 능력, 그리고 장터 상황을 고려한 안정된 투자 전략이 핵심입니다.

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  23. Проверка кошельков кошельков за выявление наличия неправомерных денег: Обеспечение безопасности вашего цифрового финансового портфеля

    В мире криптовалют становится все более существеннее соблюдать защиту собственных денег. Каждый день обманщики и киберпреступники разрабатывают новые методы обмана и воровства цифровых финансов. Ключевым инструментом существенных средств обеспечения становится анализ кошельков за выявление наличия незаконных финансовых средств.

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    Наша фирма-разработчик имеет дело с авторитетными аудиторскими организациями организациями, вроде Cure53, чтобы обеспечить и точность наших проверок. Мы внедряем новейшие и методики анализа данных для выявления опасных операций средств. Персональные сведения наших граждан обрабатываются и хранятся согласно высокими стандартами безопасности.

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