Ever heard of it? Probably not unless you’ve personally been diagnosed with peripartum cardiomyopathy (PPCM) or you know someone who has the diagnosis. I had certainly never heard of it. Even though I am a huge planner and tried to learn about any and all issues that could arise during pregnancy, I don’t remember seeing anything about this disease. Not on the pregnancy and baby blogs, not in the information I got from my doctor and not during any of my appointments.
PPCM is rare with only about 1,000 US women being diagnosed with it each year. I’m sure this contributes to the lack awareness but PPCM can be deadly. Over the course of this blog, I am going to write about my personal experience with this condition from diagnosis, the hospital stay and life post heart transplant.
So, what is peripartum cardiomyopathy after all? According to the American Heart Association (AHA) PPCM is
“an uncommon form of heart failure that happens during the last month of pregnancy or up to five months after giving birth. Cardiomyopathy literally means heart muscle disease.
PPCM is a dilated form of the condition, which means the heart chambers enlarge and the muscle weakens. This causes a decrease in the percentage of blood ejected from the left ventricle of the heart with each contraction. That leads to less blood flow and the heart is no longer able to meet the demands of the body’s organs for oxygen, affecting the lungs, liver, and other body systems.”
Symptoms are hard to diagnose because many of them are so similar to normal third trimester symptoms. According to the AHA symptoms include:
- Feeling of heart racing or skipping beats (palpitations)
- Increased nighttime urination (nocturia)
- Shortness of breath with activity and when lying flat
- Swelling of the ankles
- Swollen neck veins
- Low blood pressure, or it may drop when standing up.
My hope with sharing my experience with PPCM on this blog is to help spread awareness about this condition an hopefully help prevent other women from having to go through what I did or even worse. As the name of my favorite PPCM awareness group states, let’s SAVE THE MOMMIES!